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| This chapter must be read before any data is removed from YNiC in any form. |
YNiC deals with data which in certain circumstances may be classed as sensitive medical data. All of those who work at YNiC, whether they be full-time YNiC staff, University staff, Postgraduate students, Undergraduate students or external centre user, have a duty of care to all participants, whether they are involved in clinical or research projects. It is therefore imperative that all investigators involved in research and/or clinical scanning understand the procedures for data handling within the centre.
This chapter will deal with the two common cases experienced in the research setting. First of all, the removal of whole datasets for off-site analysis or distribution will be examined. Secondly, the use of summary data and images (such as those included in papers) will be considered.
Datasets consist of MRI, fMRI, EEG and/or MEG data collected at the centre as well as any response information collected during functional work. Datasets are stored by YNiC in a secure manner on-site and regularly backed up. Data which is made available to investigators for analysis purposes is done so in an anonymised format only using the “R” number which was assigned to the participant and the “P” number which was assigned to project for which the recording was made.
When investigators wish to perform off-site data analysis, they must contact the Data Controller at YNiC and recieve confirmation of their request before doing so. The request must contain the exact list of datasets to be removed, information about where they are being take and what the storage and transfer mechanism will be. Requests will be logged by YNiC. No data removal must occur until confirmation that the request has been logged is recieved.
If advice is required on data removal, the YNiC Data Controller will be pleased to help.