2. Data Protection Requests From Participants

Table of Contents

Requests for Picture of My Brain
Formal Data Protection Requests

Requests for Picture of My Brain

This is by far the most common request for data access by participants. In order to keep things simple, YNiC does not require a full data protection request in these circumstances, and has a standard procedure for what is delivered.

For logistical reasons, it is not possible for requests to be fulfilled on the day of the scan. Requests must be made at least one week after the initial date of the scan.

Requests must be made to the YNiC Data Controller via email or post and be accompanied by some proof of your identity. The Data Controller will then inform the participant as to when the CDROM will be available. YNiC does not charge for this service but will issue only one CD per participant. The participant will be required to pick up the CDROM from YNiC, at which time they will need to provide identification and sign for the CDROM. If the participant cannot return to YNiC to pick up the CDROM, extra identification methods will be necessary and the CDROM will be posted out (at an extra charge to the participant) by registered post. For further details, please contact the YNiC Data Controller.

Data will be prepared on a CDROM and will contain anonymised DICOM images of the YNiC T1 and T2 and AXIAL FSE protocol data along with each of those images converted into a JPEG. A README.txt will be provided at the root level to instruct users how to use the CD. No support for reading the data will be provided, however the disks have been tested on Windows, Mac OS X and Linux systems.

The creation of the disk is entirely automated and will be performed by the Data Controller. No variation in what is supplied will be available.

[Warning]Warning
Staff and other investigators must and will not hand out data in any way for removal from YNiC. All data removal and participant requests must be referred to the YNiC Data Controller who will log and deal with the request.